54 pages • 1 hour read
Judith Heumann, Kristen JoinerA modern alternative to SparkNotes and CliffsNotes, SuperSummary offers high-quality Study Guides with detailed chapter summaries and analysis of major themes, characters, and more.
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From the first page of her memoir, Judith drives home the idea that people must learn to view disability from another angle and develop an understanding of how disability might be a difference but is not necessarily a setback or something to pity. To Judith, disability is not a misfortune, and it is not something that solely defines a person. She acknowledges that without her disability, she would never have had the life she had. While her disability does define her in this way, she is not her disability. Judith sees her disability as something that pushes her to try harder, learn more, and fight against the status quo. She believes she would not have been the same if she never contracted polio because “[i]f I’d simply been a girl growing up in Brooklyn, I wouldn’t have been exposed to the same things” (202), and she has never wished that she did not have a disability. In the conclusion of her memoir, Judith urges the reader to imagine a world in which stories about people with disabilities were inspiring and uplifting, featuring people who do not pity themselves and depicting people with disabilities as the human beings that they are. Even as a child, Judith knows she has a disability but does not feel sorry for herself or see it as something that sets her back; instead, society holds her back because of her disability, such as not allowing her to attend school or obtain a teaching license.
Around the world, disability continues to be seen through a stereotyped and discriminatory lens. This fact is prominent in media and everyday life, as Judith points out that “disability is seen as a burden, a tragedy” (201). People with disabilities are often seen as helpless, incapable, or unworthy, or they are simply not seen at all. Throughout her life, Judith experiences minor and major instances of discrimination, and her anger inspires her to fight back. When she is eight years old, a boy asks her if she is sick, and it suddenly strikes her that the world views her as distinctly different and feeble. One of the most significant cases of discrimination that Judith experiences is when she tries to obtain her teaching license and needs to undergo a medical examination. While this is a standard procedure, Judith is immediately certain that the doctor is discriminating against her based on her disability. The doctor asks Judith about her bathroom habits and long-term medical history and also demands that she comes back and prove she can walk, even after Judith states several times that she cannot walk at all. People also tell Judith that she would be a fire hazard in a school and state “concerns” that she would not be able to help herself in an emergency. This results in a lawsuit that Judith wins, which sets her on a path of speaking out against the status quo. Judith proves that she is the pure opposite of feeble and helpless.
Judith’s fights to improve the lives of people with disabilities are not limited to political movements; she also seeks to improve media representation and the general outlook that people have toward disabilities. When Judith travels to India and meets an activist group that is inspiring change in their village by encouraging people to call those with disabilities by name and support them, she realizes that even the smallest of changes can make a huge difference: “You drop a petal in the water and it has a ripple effect” (197). In the conclusion of her memoir, she addresses current events and looks to the future of disability movements. She finds it difficult to reflect on the actions that Trump took during his presidency to reduce support and rights for people with disabilities, noting how progress can be reversed at any time and must never be taken for granted. Judith hopes that people who read her story will be inspired to effect change in their own ways, and she asserts that “every single person [has] a role in producing the change” (210).
Throughout her memoir, Judith stresses the power of unity in effecting change. She regularly notes that none of her achievements would have been possible without the help of like-minded people who saw the same problems and had the same goals. When Judith is in her first class, Health Conservation 21, she discovers something called disability culture, a culture that builds around people with disabilities who support each other, develop friendships, and discuss ideas for how their lives might be improved. Through her time with her classmates in Health Conservation 21, she learns that disability is a problem with society rather than individuals: “From our perspective, disability was something that could happen to anyone at any time, and frequently did, so it was right for society to design its infrastructure and systems around this fact of life” (42). Through this idea, Judith also conveys the power of society coming together to support each other and ensure that vulnerable groups are given equal opportunities and access. In her youth, Judith also attends a summer camp for children with disabilities. There she meets her first boyfriend, discovers she is attractive, and connects with others who have similar experiences. During her first teaching position, Judith and a group of friends form Disabled in Action, an organization to combat discrimination and exclusion by addressing issues in transportation and institutionalization. Judith remarks on the importance of unity in this movement and in winning her court case against the Board of Education: “The next thing you need is a group of friends to fight back with” (64).
Community and collaboration affected massive change for disability rights during the 1970s and 1980s with the Rehabilitation Act and the Americans with Disabilities Act. Each bill took years to pass, and while working for the CIL in Berkeley, Judith and the other members of the organization grow tired of waiting for HEW to sign the Rehabilitation Act. They protest at the Federal Building in San Francisco, and when the protests are initially ignored, they decide to occupy the building until their demands are met. People with all varieties of disabilities make sacrifices, missing medications and going without food as they demand equality, access, and freedom from discrimination. Activist groups such as the Black Panthers, churches, and labor unions step in to provide food, supplies, and moral support, and members of Congress speak out in support of the movement. All of these acts would have been fruitless alone, and it is only because they worked together that they eventually caused Califano to cave and sign the bill. Reflecting on this, Judith states, “All I knew is that we would have no power at all if we weren’t united” (128).
In both her Prologue and conclusion, Judith stresses the importance of collaboration, cooperation, compromise, and community. None of her achievements would have been possible alone, which is why she worked alongside others, formed organizations, and allied with governments: “My goal was to share power. Collaborate” (183). Within this unified front are individuals who are passionate and immovable, and each person has a part to play in effecting change. Judith also points to the importance of democracy because democracy allows political activism to work. For instance, passing the ADA took Republicans, Democrats, and NGOs working together. Change takes time, and it takes people “strategizing, sharing, and pulling all the levers they possibly can” (183). Democracy assumes that a government is motivated to protect and support its people, and this Judith considers this a primary responsibility of the government, one that can only be achieved through unity.
Throughout her life, Judith has experienced discrimination for her disability. This discrimination has come in all sizes and forms, and it never fails to add to the fire burning within her to effect change. Judith insists that discrimination against people with disabilities is senseless because people are more likely than not to end up with disabilities due to aging, stating that “[a]s people live longer […] more and more people who might have died in an earlier era will live. Perhaps with a disability. We should accept it. Plan for it. Build our society around it” (197). Discrimination occurs at individual and systemic levels, the latter represented by a lack of accommodations and poor or non-existent policies. Judith cites many experiences of discrimination, including not being allowed to attend kindergarten, being put into a special education class at age nine, and being told she cannot teach due to her wheelchair. Each of these experiences has a profound effect on Judith and inspired her to fight back.
Judith’s experiences led her to strive for equality by creating non-governmental organizations, participating in mass protests, working within the government, and improving herself through education, socialization, and experience. Within the organizations that she cofounded, Judith discovered a culture of acceptance and support that she had never found with people without disabilities: “We looked beyond how we each spoke and moved, how we thought and how we looked. We respected the humanity in each other. We stood for inclusiveness and community, for our love of equity and justice—and we won” (202). Judith’s responses to discrimination include forming the DIA, her lawsuit against the Board of Education, the 1977 occupation protests, her work on the Americans with Disabilities Act, and her international work.
This memoir is another political act in that it tells her story and inspires further change. The Rehabilitation Act was the United States government’s initial attempt at ending discrimination against people with disabilities, and during the rallies, hundreds spoke out about their experiences. Judith cites how sharing testimonies is a political act, with speakers “sharing thoughts, feelings, pain, isolation, anger, heartbreak, telling of years spent trying to get a job, an education, trying to count, trying to matter” (125). Judith’s and her peers’ perseverance are defining traits that separate them from stereotypes and common misconceptions about disability. Their tenacity and perseverance are necessary traits because, as the memoir demonstrates, progress takes time. Both of the major bills cited took years to pass, and Judith concludes by reflecting on how progress can be rolled back. As such, fighting for change requires constant, dedicated effort, and it requires never losing hope for a better world.
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